7th November, 2018 

                 

 Clinical Trials Connect is merging with ClinTrial Refer to provide a more comprehensive platform for access to current clinical trial information

 “There is a need to centralise access to current clinical trial information.  Knowledge relating to current clinical trials is incomplete, random and siloed. Clinical Trials Connect is merging with ClinTrial Refer to deliver a central hub where the public, health care professionals and researchers can unite with the single purpose of accessing current clinical trial activity”- Christine Zahren

  

 

ClinTrial Refer

ClinTrial Refer (CTR) is an award-winning mobile app and website platform that helps doctors and patients connect with current recruiting trials. ClinTrial Refer first launched in May 2013 and was initially set up to assist recruitment for Haematology and Oncology trials in NSW. A nine fold sustained increase in cross-referrals for trials was achieved in these areas. Now the app is being used as a template for other disciplines and conditions, including healthy volunteer trials.

There are 21 Apps in the ClinTrial Refer network across a variety of indications including breast cancer, prostate cancer and melanoma. Sydney Health Partners and SPHERE are recent licensees in the CTR stable and have introduced a variety of therapeutic areas to the platform, outside of cancer, throughout NSW. 

Currently, discipline specific ClinTrial Refer Apps can be downloaded individually. There are over 850+sites in the platform and growing. Most sites are in Australia and New Zealand, however there is also a ClinTrial Refer Lymphoma network in France, and growing International interest.  

ClinTrial Refer, Version 2 Platform Upgrade

The 2017 round of the MTPConnect Project Fund Program provided $7.18 million of funding for 19 national projects in the medtech, biotech and pharmaceutical (MTP) sector that could leverage $14.91 million in industry partner funds.  South Eastern Sydney Local Health district was the consortium lead for the ClinTrial Refer application and was successfully awarded funding for a total project value of $750,000 in the 2017 round.   ClinTrial Refer consortium members include Clinical Trials Connect, University of Sydney, Linear, SLHD, ACTA, ANZCTR, Research4 Me, Amgen and Canteen.

This project funding will allow for the development of a new IT platform to integrate the current 21 derivative apps and deliver a combined database with new search functions and linkage to the ANZCTR. The new platform is expected to be available early 2019.

Clinical Trials Connect

Clinical Trials Connect (CTC) was launched in 2008 and was established by registered nurses Christine Zahren and Mary Pym.  The service aimed to provide better access to recruiting trials. CTC helped connect people in the Australian and New Zealand community to current clinical trials and delivered recruitment solutions to researchers.

CTC successfully serviced both commercially sponsored and public good research and has worked with companies like CSL to supply scientists with fresh blood samples to support research and development of new medicines designed to treat cancer, cardiovascular, metabolic, inflammatory and immune deficiency related diseases. With over 900 individual volunteers donating to this project alone CTC is proud to have enabled significant progress to be made in the development of a number of new medicines.

Testimonials from satisfied CTC clients include, Skin & Cancer Foundation Inc., Pain Medicine and Anaesthesia, Monash Institute of Medical Research, Brain Sciences Institute, Swinburne University, BioAssets, and Jansen Cilag to name a few.  

CTC merges 10years of experience, Industry knowledge, networks and patient communities with ClinTrial Refer. CTC Director, Christine Zahren also joins the ClinTrial Refer team and will manage business development activities. Christine Zahren has worked in health care for over 25 years in various areas of the industry including aged care, acute care, rehabilitation medicine, dermatology specialist clinics, surgery and research. She also currently holds a position with The Skin & Cancer Foundation Inc. as a Trials Strategy and Development Consultant and is the co-founder and Director of White Coats Foundation-a NFP dedicated to supporting the discovery of better health.

The CTC database community will be provided with the option to join the ClinTrial Refer community.

The iconic CTC platform will close on the 28th of November, 2018 but its legacy will live on in the exciting new relationship formed with ClinTrial Refer.

Thank-you to all CTC clients and volunteer members for the wonderful support over the years.  We look forward to bringing you a new generation of access and service to meet your needs.

 

Media Enquiries:

Christine Zahren This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

 

The ClinTrial Refer SHP App was successfully launched on the 18th of October 2017 at the annual SHP forum.

The Sydney Health Partners ClinTrial app is the first to include trials from a range of different disciplines - including cardiology, neurology, gastroenterology, psychiatry - rather than being specific to one type of cancer.

The 2018 NSW Health Award was held last night on 5th Nov 2018. Almost 400 people attended from across NSW. This event provides recognition to innovative programs within NSW Health. ClinTrial Refer was recognised in the 2013 program. Visit https://youtu.be/eOSaVgRK15E to view the retrospective video celebrating 20 years of recognising innovative healthcare in NSW. 

 

Wednesday, 1 November, we had the privilege to be invited to be a panellist on a discussion about patient engagement in clinical trials at the Medical Technology Association of Australia’s (MTAA) annual medtech industry conferenceMedTech 2017. 

Visit https://research4.me/medtech2017-patient-involvement-in-clinical-trials/ for the full article.

(Panellists (L to R): Janelle, Tanya, Lillian, Roslyn, Melanie, and Tina)

SCRS Announces ClinTrial Refer as Finalist for the Asia-Pac Site Patient Recruitment Innovation Award (SPRIA AP)

Visit https://myscrs.org/scrs-announces-finalists-for-the-asia-pac-site-patient-recruitment-innovation-award-spria-ap/ for more information.

Congratulations go to Orange Clinical Trials Centre in Central West New South Wales on being selected to receive the 2017 Award. https://gicancer.org.au/news/agitg-outstanding-site-award/ 

 

 

Carem Mehrez's four rounds of chemotherapy didn't save him, but a new trial did — and now people like Carem have greater opportunities to find out about potentially lifesaving clinical trials through new funding.

 

Watch the story: https://youtu.be/XHEROJfnYOk

 

The announcement today of $750,000 in funding for the ClinTrial Refer Australia app project will boost the recruitment of patients to clinical trials Australia-wide.

This funding will allow ClinTrial Refer Australia to develop a new IT platform to integrate derivative apps; create one combined database; enable electronic referrals; link to Australian New Zealand Clinical Trials Registry (ANZCTR); and build a national solution to clinical trials recruitment.  

MTP Connect* – the Medical Technologies and Pharmaceuticals Industry Growth Centre – has announced $375,000 funding for the project over two years, with matched provisional funding of $375,000 coming from the sector.

Many community oncology practices become involved in pharmaceutical industry-sponsored clinical trials for two good reasons:

Dr Hilda High works hard to provide equity of access to cancer genetics services and cancer research trials wherever people live in Australia. Listen to Julie McCrossin interview Hilda, https://www.cancercouncil.com.au/podcasts/episode-9-genetic-tests-and-cancer/ 

 

The Melbourne 2018 Programe offers the opportunity to visit outstanding organisations and experience first hand how they deliver exceptional care. They also provide skill based training workshops with internationally renowned experts in quality improvement. Many international speakers were invited to the event and our ClinTrial Refer Rural NSW app manager Stephen Millard from Orange Hospital who was awarded the Premiers Award for "Outstanding Clinical Trial Site" in NSW spoke at the event. 

For more information visit http://internationalforum.bmj.com/melbourne/programme-overview/ 

On the Mornings with Wendy Harmer, Dr Norman Swan explains the basics of clinical trials. “Survival is higher when you are on a clinical trial.” Skip to 6:50 if you would like to listen to how ClinTrial Refer helps to connect patients to trials.

http://www.abc.net.au/radio/sydney/programs/mornings/the-waiting-room:-drug-trials/8830362

 

Looking back on a report produced by ANZCTR for 2005-2015, it provides a comprehensive assessment of clinical trial activity in Australia. The Australian Government has made large contributions towards the clinical research scene since 2005. The ANZCTR has done a magnificent job in promoting clinical trials. ClinTrial Refer is honored to be a contributing factor in helping in this regard (for more details download the document and read page 2).

http://www.anzctr.org.au/docs/ClinicalTrialsInAustralia2006-2015.pdf

 

In 2016 the Clinical Trials Stream was awarded a $40,000 grant from Sydney Health Partners to accelerate the development of the Sydney Health Partners ClinTrial Refer app. 

https://www.slhd.nsw.gov.au/sydneyhealthpartners/SHP-referApp.html

A new handbook is released combining several guidance documents (Access to unapproved therapeutic goods - Clinical Trials in Australia, October 2004; Human Research Ethics Committees and the Therapeutic Goods Legislation, June 2001; Australian Clinical Trials Handbook, March 2006) into one handbook. It can be downloaded via this link 

 

Roslyn Ristuccia at the Sydney Innovation and Research Symposium 2017 highlighting published results on the effectiveness of ClinTrial Refer apps.

 

https://youtu.be/cYBOLseAd2w

A new report reveals Australia ranks in the top tier of national clinical trial activity with more than 10,000 clinical trials conducted between 2006-2015, with cancer the most frequently studied health issue.  

Follow this link for the full article https://sydney.edu.au/news-opinion/news/2017/12/20/new-report-reveals-insights-into-clinical-trials-in-australia.html 

 

WhiMSICAL is a global clinical trial inviting Waldenstrom's Macroglobulinemia (WM) patients to provide their clinical data which will help advance current knowledge and understanding of this disease. CART-WHEEL (Center for Analysis of Rare Tumors) is a database designed to address some of the barriers facing effective research into rare cancers. Show your support and spread the word. If you are a WM patient or know of one, send them to www.cart-wheel.org and complete a simple survey. 

Held on Thursday 26 and Friday 27 October 2017 at Sydney Showground, Sydney Olympic Park, this unique stat​ewide gathering showcased local innovation that has made a difference to patient care across New South Wales. Around 1000 clinicians, consumers, academics, Board members and managers from health services, non-government and professional organisations came together to share expertise, celebrate achievement and look towards the future.

http://www.health.nsw.gov.au/innovation/2017symposium/Pages/default.aspx

MTPConnect released a report in June 2017 providing an overview of the entire clinical trials scene in Australia. It highlights significant contribution that clinical trials makes to the Australian economy and provides an evaluation on Australia's strong competitive position in the world market. 

 

Click on the image to download the report.